The straight-talking parenting podcast in which we shine a light on the particular highs and lows of raising disabled children, acknowledge our triumphs and our mistakes and embrace all of our beautiful differences.
Because really, what the f**k is normal anyway?!
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EPISODE 30: From trauma to renewed purpose with brandi Amiss-Towler
In this week’s episode, Lauren and Rina sit down with Brandi Amiss-Towler as she shares the extraordinary story of her son Caspian’s birth, the challenges of his early days, and how her experiences have driven her to retrain and pursue a career in law. Brandi offers a candid and raw account of the early days, navigating a complex medical journey with a large number of professionals and an extended hospital stay. She also reflects on what motivated her to take on her impressive journey to courtroom advocacy and shares some wise words of advice for other parents. What an incredible women!
EPISODE 29: helping my child find her voice with Cat Troiano
In this week’s episode, Lauren and Rina chat with museum curator and researcher Cat Troiano. Cat is mother to two young daughters, Stella (4) and Petra (almost 3). Stella has 5p minus syndrome, also known as Cri du Chat syndrome. Growing up in a multilingual family with a strong focus on language and linguistics, Cat’s perspective was profoundly transformed by her fight to meet Stella’s communication needs. This thought-provoking conversation delves into Cat’s journey, the challenges she faced and how she advocated to ensure Stella could more easily interact with the world around her.
EPISODE 28: “love makes the world go round” with David Thacker & Margot Leicester
In this week’s episode, Lauren and Rina sit down with the accomplished theatrical duo David Thacker and Margot Leicester to discuss their experiences as parents of their youngest adult daughter, Elizabeth, who is autistic and has learning difficulties. In this warm and inspiring conversation, David and Margot reflect on their journey raising a disabled child and adult, offering heartfelt wisdom on what truly matters most.
EPISODE 27: SEN FINANCES WITH SEND PROTECT FOUNDER Cara Roughani
In the latest episode of the Fking Normal Podcast, hosts Rina and Lauren sit down with Cara Roughani to discuss her remarkable parenting journey and the inspiration behind creating SEND Protect. Cara, a passionate advocate for the financial empowerment of families with SEND children, shared her personal experiences navigating her parenting journey as well as the inspiration behind her founding SEND Protect. Wanting to educate families, parents and carers with the knowledge and tools they need to safeguard their child's finances, Cara used her vast experience in the field to create a safe space to help other families. The conversation is incredibly valuable as Cara answers finance related questions sent from the podcast community about money, savings, wills and pensions (to name just a few...)
EPISODE 26: From early days survival to changing the world with Sara Johnson
In this episode, Rina and Lauren talk with Sara Johnson about the birth and diagnosis of her now 19 year old son, who has 18p deletion syndrome. They discuss how this led to her career pivot, as after forging a successful career as a TV drama executive, Sara now focuses her efforts on advocating for and representing disabled talent in the industry. It is a sweary, candid and often emotional discussion, peppered with Sara’s nuggets of wisdom.
EPISODE 14 - Intersectionality, community & representation with Tinuke Awe
In this week’s episode, Lauren and Rina interview the incredible social entrepreneur and campaigner, Tinuke Awe. Tinuke recounts her experiences raising her black autistic son and passionately describes the work that she is doing to challenge prejudice, create community and shine a light on her son’s identity. The group discusses the absence of role models and representation, the importance of finding community and how to tackle cultural barriers to acceptance of disabled children. It is an emotional and joyful conversation that veers between anger, tears and lots of laughter.
EPISODE 13 - Coping through connecting and community with melanie dimmitt
In this week’s episode Rina and Lauren discuss the importance of connecting with people who share your experience, building a community (hello the fkingnormal podcast!) and just how valuable this is for providing a safe space to cope through difficulties — together. They interview Australian author and advocate Melanie Dimmitt on her journey to accepting her less typical parenting path, what she learnt and what she has gone on to achieve to support others in a similar position.
Melanie discusses the initial feelings she had hearing her son’s diagnosis, her path to finding acceptance and how connecting with others in similar situations opened her eyes and prompted her to write her debut book. The group discuss their own routes to acceptance and how building support networks with others was the life line that they all needed. Melanie spoke candidly about what she first struggled with, but also highlighted just how relieving it was to find others that she could relate so deeply to.
EPISODE 12 - Telling your own story with emmett de monterey
This week Rina, Lauren and season one guest Gemma Sherlock, interview trained psychotherapist Emmett de Monterey on his extraordinary life and memoir ‘Go The Way Your Blood Beats.’
Diagnosed with Cerebral Palsy at 18 months old, Emmett was raised by loving, accepting and liberal parents and yet he grappled for a long time with accepting his own identity. His feelings towards his disability, coupled with the realisation that he was gay made his early adolescence a difficult time in his life. This was further compounded by becoming a media sensation and ‘charity poster child’ for a ground-breaking gait surgery in the US.
Episode 5 - Advocacy
In episode 5 Lauren and Rina talk about a skill we have all had to develop as parents of disabled children – advocacy - with Mum of two and lawyer Caroline MacPake (Withers professionally).
Systems of support aren’t always automatically in place for disabled children and their families, and the world simply has not been designed for disabled people. As parents of disabled children, we have to champion, persuade and shout loudly on our kids behalf.