Episode 7 - Acceptance
Our guests, couple Clare (on the left with mid length dark hair) and George (on the right with beard) are smiling with heads touching.
It’s our series 1 finale and time to turn the tables on our hosts, Lauren and Rina are interviewed by our first ever podcast guest, the wonderful Genevieve. They discuss their experiences of pregnancy, birth and diagnosis with some key moments of acceptance, internal and external influences that helped, from language to being kinder to oneself, modifying parenting expectations and learning to not give a shit about what others’ think.
For our 3 hosts (& most of the podcast team), acceptance often creeps in, over time.
Of course, there are setbacks along the way, with an array of examples and themes discussed.
As parents of disabled children, some days are hard and some days are great. Over time, Lauren, Rina and Gen have learned acceptance and the peace that goes with it, through various ways, to help get through the shittier times and to have perspective.
Trigger and Content Warnings
Diagnoses Stories
Possible Death in Early Infancy
Misdiagnosis
Mental Health
Disability & SEN Language
Birth Stories
Neonatal Intensive Care Unit Stories
Resource Links
A tracheostomy is an opening created at the front of the neck so a tube can be inserted into the windpipe (trachea) to help you breathe.
Pierre Robin Sequence - Health Research Authority
Pierre Robin Sequence (PRS) is a condition present from birth with three main features: a small lower jaw (micrognathia), backward-positioned tongue (glossoptosis), and defect of the roof of the mouth (cleft palate). Together, these abnormalities can cause airway obstruction and breathing or feeding difficulties.
Chromosome 18q -
https://www.chromosome18.org/18q/distal-18q/
Noonan Syndrome –
https://www.noonansyndrome.org.uk
As Gen mentions at the start of the episode, Lauren is running the London Marathon to raise money for Great Ormond Street Hospital - If you can afford to, and want to make a donation, here is her just giving page:
Lauren Fenton is fundraising for Great Ormond Street Hospital Children's Charity (justgiving.com)
